tag:blogger.com,1999:blog-7472224025094243451.post6045263348040967679..comments2024-01-01T00:32:27.187-08:00Comments on Ella Grace with the Pretty Face: 31 for 21 : Sensory issues????Kacey Bodehttp://www.blogger.com/profile/00416383186475328888noreply@blogger.comBlogger11125tag:blogger.com,1999:blog-7472224025094243451.post-62216357398620442682012-10-22T23:17:40.547-07:002012-10-22T23:17:40.547-07:00I hope you don't mind, but I linked to this po...I hope you don't mind, but I linked to this post on my blog. It fit so well with what I was writing and I finally caught up with your blog this past weekend so it was perfect timing! Thank you for sharing!!!!Sweet Pea's Mommyhttps://www.blogger.com/profile/04865365312620255005noreply@blogger.comtag:blogger.com,1999:blog-7472224025094243451.post-39615375340465310592012-10-10T08:42:28.979-07:002012-10-10T08:42:28.979-07:00This comment has been removed by the author.Kimberlyhttps://www.blogger.com/profile/18112747472352669385noreply@blogger.comtag:blogger.com,1999:blog-7472224025094243451.post-3100658252250686502012-10-10T08:42:28.541-07:002012-10-10T08:42:28.541-07:00This comment has been removed by the author.Kimberlyhttps://www.blogger.com/profile/18112747472352669385noreply@blogger.comtag:blogger.com,1999:blog-7472224025094243451.post-41860460629498406442012-10-10T08:42:23.192-07:002012-10-10T08:42:23.192-07:00I feel your frustrations! And while they aren'...I feel your frustrations! And while they aren't always all consuming sometimes I find acknowledging to myself that sometimes this is hard helps me move on and figure out what I need to.<br />So glad that you took the time to write out your thoughts!Kimberlyhttps://www.blogger.com/profile/18112747472352669385noreply@blogger.comtag:blogger.com,1999:blog-7472224025094243451.post-63446029102379949872012-10-10T07:58:33.301-07:002012-10-10T07:58:33.301-07:00You are not alone! I can so relate to this. My d...You are not alone! I can so relate to this. My daughter Kate is 5 1/2 and also is the only child in the entire elementary school with Ds. The only other child with Ds is a senior in high school now, so I too am trying hard to have Kate make a good impression of what Down syndrome is all about, and myself too :) Our daughters have alot in common, very similar in their actions, habits, and naughtiness!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7472224025094243451.post-46513487865521234462012-10-09T21:02:53.509-07:002012-10-09T21:02:53.509-07:00BTW... I mean OUR issues with B are bad attitude.....BTW... I mean OUR issues with B are bad attitude... not Ella's!! :o)RKhttps://www.blogger.com/profile/11259757888643034394noreply@blogger.comtag:blogger.com,1999:blog-7472224025094243451.post-70536732310651913582012-10-09T21:01:53.717-07:002012-10-09T21:01:53.717-07:00I'm exploring some more official sensory evalu...I'm exploring some more official sensory evaluations this week. Though Braska's issues look a little different than you're describing, we also see the unpredictable behavior sometimes. She can be a total peach for 3 weeks in a row at school and then one day be a total terror. Since she's the only kid with a disability in her little private elementary school, I also find myself with way too much of the "why can't you be a good representative?" thing. <br /><br />Bottom line, sensory stuff is SO hard. To know if it's a cause and to what extent. And some I think is just the age, whether chronological or developmental... I wonder if some of the issues here aren't just pure bad attitude. Where did my super sweet, very compliant little girl go?!?RKhttps://www.blogger.com/profile/11259757888643034394noreply@blogger.comtag:blogger.com,1999:blog-7472224025094243451.post-49619637228110017172012-10-09T18:58:55.411-07:002012-10-09T18:58:55.411-07:00Great post, great questions. I wish I knew what w...Great post, great questions. I wish I knew what was going on in Claire's head on the mornings like today she wakes up "don't want to go to school today!" how is today different then yesterday when you couldn't wait to get to school??? I'm just reading this now but I think it's kind of funny that today my post was about all the places I kick myself after I take Claire too. Why do I keep doing this to myself and to her? I think you are so brave to keep trying. It is hard to put yourself and your girl out there all the time. You are a great Mommy! Tamihttps://www.blogger.com/profile/06580783653375514931noreply@blogger.comtag:blogger.com,1999:blog-7472224025094243451.post-28727539925539149172012-10-08T18:16:11.477-07:002012-10-08T18:16:11.477-07:00oh man. Yeah. I recognize this. I will stop myself...oh man. Yeah. I recognize this. I will stop myself from writing a very very long comment. Catehttps://www.blogger.com/profile/16248485766805270628noreply@blogger.comtag:blogger.com,1999:blog-7472224025094243451.post-37137165415692348582012-10-08T16:47:26.669-07:002012-10-08T16:47:26.669-07:00And another BIG sympathetic hug from me. Anna'...And another BIG sympathetic hug from me. Anna's behavior is so unpredictable and it is driving me nuts. And, I have to say that I am jealous that Ella is well-behaved at school, because Anna is not -- and talk about adding unwanted stress. =( <br />Anyway -- you are doing great with Ella -- and it shows! She does Down syndrome proud! =)Lorihttps://www.blogger.com/profile/14816187144933886978noreply@blogger.comtag:blogger.com,1999:blog-7472224025094243451.post-63682161412143152852012-10-08T14:26:50.999-07:002012-10-08T14:26:50.999-07:00Ah, I could totally have written this myself. So,...Ah, I could totally have written this myself. So, so, so like Samantha, the same. exact. thing. I never know what her triggers are, when she's going to be easy and awesome, when she's going to completely go off on her own tangent. I also wonder what happens to her brain in those situations. You've got BIG sympathetic hugs from me here...Beccahttps://www.blogger.com/profile/14963099760885760598noreply@blogger.com