tag:blogger.com,1999:blog-74722240250942434512024-01-22T19:28:22.069-08:00Ella Grace with the Pretty FaceThe story of our sweet baby who just so happens to have Down Syndrome.Kacey Bodehttp://www.blogger.com/profile/00416383186475328888noreply@blogger.comBlogger486125tag:blogger.com,1999:blog-7472224025094243451.post-41260407568339558402014-05-14T21:34:00.002-07:002014-05-14T21:34:53.374-07:00BFF'sOne of my biggest fears for Ella, from the very beginning, was that she wouldn't have friends. I remember when we first moved here to Spokane, when Ella was 1 1/2 years old, watching 2 little girls in the apartment complex playing together, giggling and jumping rope. It broke my heart. Would Ella ever know what that felt like? Would other kids accept her for who she is or would they turn away from her because she is "different?" Luckily Ella has had some good little friends in preschool, but they kind of out grew her. The kids in her kindergarten class were really nice to Ella but she didn't have anyone that seemed particularly close to her. This year we moved onto 1st grade, (in our district Kindergarten is it's own school,) elementary school. It was a very scary time for me. We had to do some negotiating (to put it nicely) to get an acceptable, to me, amount of gen ed time. But with time in the general education classroom comes the big fears, how the kids will treat her and how the parents of the "typical" kids will feel about a child with Down syndrome being in class with their kid. We have been so incredibly happy with the way this school year has gone! Ella spends 50% of her time in the gen ed class and 50% of her time in the Extended Resource room. Both of her teachers are fabulous!! The kids in the gen ed room have been amazing with Ella! The gen ed teacher does a wonderful job at having a classroom that truly is inclusive, and I think she has done a great job of fostering friendships.<br />
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I went into the school yesterday to pick up Hunter and Ella. On Tuesdays Ella is dismissed from music and her gen ed teacher comes to pick up the kids and always stops to tell me how Ella's day went. She told me that Cayce (a little girl in Ella's class) brought Ella a necklace and a picture and how sweet it was when she gave it to Ella. The bell rang and out came Ella, she ran up to me and excitedly showed me her necklace. It's a Best Friend necklace, the kind where one person has the "Best" half and the other has the "Friends" half. It was all I could do to not break down and cry right there at the front door of the school. Seriously melt my heart!!! I'm not sure how to say what this represents to me. I'm sure a lot of people will think it's silly that I am so excited about a necklace. But it's not just about the necklace. It's about my child having a real connection with another child. It's about another little girl thinking about my Ella outside of the classroom. It's about another parent allowing her child to have a friendship with a little girl with Down syndrome. It's about the pure love and excitement that shows on Ella's face when she wears her necklace and talks about her FRIEND Cayce!!<br />
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I posted this picture of Ella wearing her necklace and holding her picture yesterday on Facebook. The mom of the other little girl found me through a mutual friend. She sent me a private message....<br />
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<span style="background-color: #f7f7f7; color: #3e454c; font-family: Helvetica, Arial, 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 12px; line-height: 15.359999656677246px; white-space: pre-wrap;"> I just wanted you to know what a blessing it has been to watch this little friendship
Cayce ADORES Ella .</span><br />
<span style="background-color: #f7f7f7; color: #3e454c; font-family: Helvetica, Arial, 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 12px; line-height: 15.359999656677246px; white-space: pre-wrap;"><br /></span>
To which I wrote her back expressing my feelings, and she responded with...<br />
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<span style="background-color: #f7f7f7; color: #3e454c; font-family: Helvetica, Arial, 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 12px; line-height: 15.359999656677246px; white-space: pre-wrap;"> I am so thankful for Ella ! Cayce has really taken to her and she tells her sister all about her .
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<span style="background-color: #f7f7f7; color: #3e454c; font-family: Helvetica, Arial, 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 12px; line-height: 15.359999656677246px; white-space: pre-wrap;"><br /></span>
Oh and her gen ed teacher left this comment...<br />
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<span style="background-color: #fafbfb; color: #4e5665; font-family: Helvetica, Arial, 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 12px; line-height: 15.359999656677246px;">Their interaction the other morning will definitely be one of the highlights of my teaching career! I love both those girls and have no doubt this is just the beginning of a lifetime of sincere and quality friendships for Ella.</span><br />
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I am one happy mama.<br />
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Kacey Bodehttp://www.blogger.com/profile/00416383186475328888noreply@blogger.com5tag:blogger.com,1999:blog-7472224025094243451.post-14317061580541106482014-03-21T16:42:00.000-07:002014-03-21T16:42:39.773-07:00Happy World Down Syndrome Day!!Today is World Down Syndrome Day!!! I went into Ella's 1st grade class and read a story about Down syndrome and Ella handed out yellow and blue cake pops to all the kids. The kids asked great questions! At the end Ella's teacher handed Ella a folder full of cards that her classmates made for her. Reading through them brought tears to my eyes! THIS is inclusion working!!!
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You are one of my best friends. You are awesome<br />
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You are fun and you are a good friend and you are nice you are my hero you are the nicest friendKacey Bodehttp://www.blogger.com/profile/00416383186475328888noreply@blogger.com3tag:blogger.com,1999:blog-7472224025094243451.post-61894967722495605182014-02-01T20:12:00.000-08:002014-02-01T20:12:05.131-08:00Sledding Day!!!We took the kids sledding today! It was a blast! Ella really surprised me at how well she did, she must have walked up the hill 50 times!!!
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<br />Kacey Bodehttp://www.blogger.com/profile/00416383186475328888noreply@blogger.com1tag:blogger.com,1999:blog-7472224025094243451.post-74791093066358624652014-01-10T17:11:00.000-08:002014-01-10T17:11:12.306-08:00A Big HaircutElla has been fighting me when I brush her hair lately. To her credit her hair has been ridiculously tangled. I think the cause of it was her "leash" that goes from her hearing aids and clips on the collar of her shirt. We decided it was time to cut her hair. <br />
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Getting her hair washed for the first time at a salon.<br />
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She was feeling pretty big : )<br />
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The first big cut<br />
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There was a whole lot of hair on the ground! Sadly it was not long enough for us to donate to Locks of Love<br />
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Then Ella requested to go under the dryer<br />
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She was quite pleased with herself!<br />
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All styled up....which it never will be again because I do not own, nor know how to use a curling iron.<br />
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Beautiful girl!!!<br />
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I am happy to report that Ella LOVES her haircut (so do I) and it is super easy to brush!!!!</div>
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<br />Kacey Bodehttp://www.blogger.com/profile/00416383186475328888noreply@blogger.com2tag:blogger.com,1999:blog-7472224025094243451.post-59676185864983526972013-10-31T21:09:00.002-07:002013-10-31T21:09:25.023-07:0031 for 21: Happy Halloween!!!!!!Happy Halloween!!!! We had a GREAT day! The kids were both so much fun this year! Their school didn't do parties but did fun activities throughout the day, and they wore their costumes to school.<br />
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Ella was "Oreo" (Ariel!)<br />
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Hunter was a very handsome military man. "Delta Force" to be exact.<br />
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Princess wave and a salute!<br />
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Yikes...Hunter what is that thing next to you????<br />
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Oh, it's your father.<br />
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When Hunter came in and took off his camo shirt I was shocked at just how much it reminded me of Chris. This is what Chris looked like for much of our marriage, when he would come home from work and take off his camo shirt, black t shirt and camo pants. Crazy.<br />
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The kids telling eachother about their day. So sweet.<br />
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Man I love these two.<br />
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Guitar practice! He has memorized Ode to Joy and can play it without the sheet music in front of him!<br />
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Nana came over and brought presents!!!!<br />
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These little flashlights were a huge hit with both!<br />
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We had Jack O Lantern pizzas and then got ready to go trick or treating.<br />
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Wait!!! Where did Hunter go? I can't see him!!!!<br />
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Ella was NOT a fan of Chris' suit.<br />
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moving closer<br />
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I will stand beside Bubba!!!<br />
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She finally warmed up to Daddy! I have to say that Ella did 500% better trick or treating than she ever has. She did not try to go into anyone's house and she never once complained that she was tired! Every 30 seconds or so she would say " I love trick or treating!"<br />
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<br />Kacey Bodehttp://www.blogger.com/profile/00416383186475328888noreply@blogger.com2tag:blogger.com,1999:blog-7472224025094243451.post-59131268760245553212013-10-30T19:58:00.001-07:002013-10-30T19:58:35.009-07:0031 for 21: OpinionsApparently Ella is developing strong opinions about her clothing these days. I think it's pretty awesome : )
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Today was school picture day. Last night I was pulling out different shirts and holding them up to her. She decided right off the bat that she liked this one.<br />
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I kept trying to get her to forget about it because I really wanted her to wear a blue one that made her eyes sparkle. But it wasn't worth the battle : )<br />
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She also decided that she needed a scarf!<br />
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The other night I got Ella out of the bath and put on her jammies. Well...Hunter's old jammies, which she has always thought were cool. Ella started bawling. Her bottom lip was poked way out and she said "But I not a boy. I a girl." I explained that it was okay to wear boy jammies, especially since they were so nice and warm. She got over it. Then last night I got out more boy jammies (because dang it they are expensive and Hunter's old ones are still in great shape,) and she poked out that lip and said "I not cry. But I still not a boy." Gotta love it : )Kacey Bodehttp://www.blogger.com/profile/00416383186475328888noreply@blogger.com1tag:blogger.com,1999:blog-7472224025094243451.post-63096211077285681772013-10-29T20:20:00.000-07:002013-10-29T20:20:00.517-07:0031 for 21: Dream BIG<div class="separator" style="clear: both; text-align: center;">
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<br />Kacey Bodehttp://www.blogger.com/profile/00416383186475328888noreply@blogger.com0tag:blogger.com,1999:blog-7472224025094243451.post-26462946825759673902013-10-28T17:18:00.000-07:002013-10-28T17:18:11.845-07:0031 for 21: Math MondayWhile we were shopping last Friday a guy at Macy's told us that they had bought their 7 year old grandson an Abacus, after he watched Ella add using her fingers. So, today I bought her one! It made her math homework go much faster and she was able to do it pretty independent...until the last few problems when she needed motivation to finish. But, she seemed to enjoy using the beads and it definitely went much faster!
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If you can't view the above video click <a href="http://www.onetruemedia.com/shared?p=128a13ca13a521cbe812ed0&skin_id=701&utm_source=otm&utm_medium=text_url">HERE</a>Kacey Bodehttp://www.blogger.com/profile/00416383186475328888noreply@blogger.com0tag:blogger.com,1999:blog-7472224025094243451.post-49888293478702001652013-10-27T19:31:00.000-07:002013-10-27T19:31:01.015-07:0031 for 21: Apples and PumpkinsToday was apple day!
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Our peeling helper<br />
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Apple pie filling for my mom's birthday....hope it turns out : )</div>
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We made and canned 18 32oz jars of applesauce, and 5 little ones(the best applesauce ever!)</div>
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Then we had pumpkin time! The kids and their pumpkins that they got on their field trips to the pumpkin patch</div>
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Ella drew her face on...by herself!<br />
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Hunter did almost all of his carving by his self this year!<br />
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Ella's first handful of goop<br />
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She FREAKED out. Poor kid, she was screaming "It's ooey gooey. GET IT OFF."<br />
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Of course I am mean and made her go back for more.<br />
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Because I KNOW my kid. Sometime her initial reaction is to freak out, but I knew she would like it.<br />
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Chris on the other hand did not like it at all : )<br />
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Hunter pretending to gag<br />
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By the end of it I had to pull Ella away from the pumpkin guts....she made "pizza" out of her goo<br />
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She was all into it.<br />
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Carving away<br />
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This is very serious work : )<br />
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Hunter did a GREAT job!!!!!<br />
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Ella drew a great face : )</div>
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My house has a strange smell, combo of 6+ hours of cooking apples, raw pumpkin and frozen pizza : )Kacey Bodehttp://www.blogger.com/profile/00416383186475328888noreply@blogger.com0tag:blogger.com,1999:blog-7472224025094243451.post-57648831949133194252013-10-27T00:34:00.002-07:002013-10-27T00:34:14.251-07:0031 for 21: Soccer SaturdayHunter and his team had a great game today! The last 3 games have been super exciting and Hunter and all of the boys have been improving so much! I love watching him play!<br />
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My mom and I were remarking on how Hunter seems to be getting a little taller and losing his baby face.<br />
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That is Hunter...the big head, heading the ball!<br />
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Defense<br />
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Kicking for the goalie<br />
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After game huddle...they won!<br />
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This is the only pic I got of Ella today....she waits pretty patiently during each of Hunter's games, and as soon as it is over she takes Hunter's ball and goes to make a goal. She is quite good at controlling the ball!<br />
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<br />Kacey Bodehttp://www.blogger.com/profile/00416383186475328888noreply@blogger.com0tag:blogger.com,1999:blog-7472224025094243451.post-21634810209260905902013-10-25T22:19:00.001-07:002013-10-25T22:19:34.162-07:0031 for 21: My spirits raised!I have come to the realization that so much of my mood is directed by my children...most specifically Ella. I don't want to imply that her direct actions always effect how I feel, it's more the indirect stuff, the school stuff, random health stuff, the worries about it all. It all weighs heavily on me, and sometimes my mind gets so bogged down with all of it that I just feel....well blah. Of course I still joyfully interact with my children, and always feel blessed for the life that I have, but my mind constantly races. It's a problem. I know. But then a day like today comes a long and I feel rejuvenated, reset.<br />
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When I went in to pick the kids up today Ella was leaving the music room. She saw me and said "I not get kicked out of music. Just going potty," and showed me the bathroom pass. She independently walked to the bathroom down the hall, did her business and went right back to class, turned in her pass, grabbed her backpack and jacket and came back to me. That in and of itself makes me happy. The level of Independence in that crazy open concept school, the fact that she knows where she is going and that the teachers TRUST her to go by herself says a lot! While she was going to the bathroom Ella's gen ed teacher came up to me in the hall and said that Ella did great with her hearing aids again today, that one fell out during recess and she immediately came running to her teacher for help to put them back in. She said that they had a lockdown drill, followed by a fire drill. The special ed teacher has asked her (the gen ed teacher) if she should send an aide in to be with Ella during the drill because of the noise and confusion and the gen ed teacher told her "no, lets just see how it goes." LOVE THAT. Even better my girl did exactly what she was supposed to do. She didn't freak out due to the loud bells and alarms even with having her hearing aids in, and she didn't get lost or distracted in the confusion. YAY!!<br />
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Chris took Hunter to guitar lessons this evening and Ella and I went and did a sneak attack on Nana at the mall! We were just stopping by to show her Ella's new hearing aids in person and we ended up shopping for 4 hours. I have to say that this is the most fun shopping trip for us 3 girls ever. I, of course, always have fun shopping with my mom but typically when Ella is with us it involves her running off, grabbing everything, having to be strapped in the stroller which at 7 years old she hates! Tonight, none of that. She was awesome! No stroller involved, no asking to be carried, none of it. She was pleasant and happy to be having "girl time!" She entertained many an employee, even had someone stop and say the Pledge of Allegiance with her. The girl is magnetic. Sometimes it takes the good days to make me remember that. People are drawn to her for sure. We did have to make multiple trips to the bathroom, but it was fine, we made it every time and had good conversation walking back and forth, lol, including "mom I love my hearing aids." We even did a girls dinner, just the 3 of us.<br />
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Tonight I have a very happy heart!!!
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My little guy about to go to guitar<br />
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Giving sissy a kiss goodbye.</div>
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Ella and her stuffed unicorn that she got on our shopping trip today!<br />
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<br />Kacey Bodehttp://www.blogger.com/profile/00416383186475328888noreply@blogger.com1tag:blogger.com,1999:blog-7472224025094243451.post-2454967993606716312013-10-24T20:34:00.001-07:002013-10-24T20:34:18.204-07:0031 for 21: Happy Day...mostly.Ella wore her hearing aids to school today for the first time. The hearing aid lady (man I really need to figure out her title) suggested that this week Ella only wear them at home and "practice." Well, Ella asked to wear them to school and has done great so I figured why not. I will admit I was super nervous all day, worried she would mess with them, worried she would be overwhelmed by things being a little louder, and worried she would lose them. But all that was for nothing...at least for today...Ella wore them ALL day. Her gen ed teacher said it was like they weren't even there, that she didn't see her mess with them at all. Including gym class!!!! Hooray! I am so proud of her! Also, when I picked her up today a little boy standing in front of her in line said "Guess what? Ella scored a goal in gym today!" So sweet. I am so glad that the kids in her class, kids I know in the school, and kids in Hunter's class fill me in on some of the things Ella does during the day....it's pretty much the only communication I get.
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The not so great part of the day, I think Ella's bladder issues are back. I'm not sure I wrote about them before but Ella started having a lot of pee accidents and was having some pretty serious anxiety over it. She didn't want to get in the van because she had several accidents in there and she didn't want to sleep because she was afraid she would pee the bed. She would go to the bathroom several times right before we would walk out the door. I took her in and they screened her urine and all was good. The doctor thought that maybe she was having bladder spasms and put her back on the medication we used to expand her bladder 2 years ago, a smooth muscle relaxer, for 2 weeks. That seemed to take care of the issue. Now she has been off of the meds for about 2 weeks and woke up this morning soaked. No biggie, though that never happens. Then this afternoon I had her go to the bathroom right before we walked out the door to get Hunter, not 20 minutes later she had an accident in the van. Ugh. It upsets her, though I was able to blow it off as no big deal and she was okay tonight but I don't want to start this again. Guess I'm going to have to take her to the urologist. Anyone else had this issue??? <br />
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<br />Kacey Bodehttp://www.blogger.com/profile/00416383186475328888noreply@blogger.com0tag:blogger.com,1999:blog-7472224025094243451.post-85598528665145946752013-10-23T21:57:00.001-07:002013-10-23T21:57:09.810-07:0031 for 21: Seriously????It's that lovely time of the year where the school fundraisers are in full force. I HATE fundraisers...I get that they are a necessary evil, I guess, but I hate them. This years involves the kids getting lanyards and penguin keychains. Apparently EVERYbody has them. So, in order for them to get a lanyard and 2 penguins and a gross squish ball they had to sell 4 items, a piece. Because of course they have to be equal in their cheap prizes. Thankfully my mother is a sucker for these 2 and so am I : ) So the kids and I went to school early, because you can only get the prizes before school, and went into the gym. I, of course, am the only mom in there other than those handing out the prizes because Ella can't just be unsupervised for 20 minutes before school starts. And let me tell you Ella was keenly aware of the fact that her mom was in there when others weren't. She told me about 20 times "you can go now," annoyed, and kept trying to get in a different line than me. Luckily Hunter could care less that I am there, and I am so thankful that he can still be seen with me! Poor Ella, I love that she gets it, but also hate that she gets it. Know what I mean?
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The "seriously" part from the title comes in with these pictures. I THOUGHT that as my kids got older they would totally understand that if they just stand there, look at me and smile we could be done in 5 seconds. BUT NOOOOOOOOO! They are forever thinking of ways to make me crazy. Hunter's fake smile kills me and Ella just enjoys looking at anything other than me all while jutting out her bottom jaw. So here are 6 of the 15 pics I took tonight...the best 6, ha! SERIOUSLY????? JUST COOPERATE! Oh yeah and they are showing off their stupid lanyards and penguins. I hope they enjoy them cause that's all they get!!!<br />
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<br />Kacey Bodehttp://www.blogger.com/profile/00416383186475328888noreply@blogger.com0tag:blogger.com,1999:blog-7472224025094243451.post-74582313358941880432013-10-22T19:09:00.001-07:002013-10-22T19:09:19.305-07:0031 for 21Nothing much to write today. Ella didn't wear her hearing aids to school today (at the advice of the hearing aid lady,) we did put them on right after school and she did good. We had McTeacher night tonight, (school fundraiser at McDonalds) and Ella did seem a bit overwhelmed by the noise when we first got there. And to be fair it was super loud and crowded, and I was a bit overwhelmed. Ella adjusted pretty quick and was fine!
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Here she is after her bath...with hearing aids in, ready to watch a movie and relax!<br />
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<br />Kacey Bodehttp://www.blogger.com/profile/00416383186475328888noreply@blogger.com0tag:blogger.com,1999:blog-7472224025094243451.post-51750786175540922092013-10-21T20:33:00.002-07:002013-10-21T20:33:30.175-07:0031 for 21: Hearing AidsElla got her hearing aids today!!! She wore them from her appointment at 3:30 until bedtime without touching them! I am SO proud of her! She was pretty funny and basically yelled every word she said at us for a couple of hours. The hearing aid lady said that Ella's voice will sound different to herself with the aids on so she was just experimenting! Luckily by the end of the night her voice returned to it's normal volume! The lady (I do not know what her title is???) recommended that Ella not wear the aids to school this week and that we wear them at home to get used to them before sending her to school for 6 hours, so I guess that is what we are going to do even though she seems to be just fine with them.
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I love the color combo....the purple matches her glasses perfect!</div>
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Not a great pic of Ella but wanted to show what it looks like from the front....</div>
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Ella also got her new boots in the mail today!!!!<br />
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I want some!!!<br />
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<br />Kacey Bodehttp://www.blogger.com/profile/00416383186475328888noreply@blogger.com0tag:blogger.com,1999:blog-7472224025094243451.post-23281867714509685402013-10-20T20:18:00.001-07:002013-10-20T20:18:17.201-07:0031 for 21 : SlackingMan I am really slacking this October. I guess I have somethings to discuss...but no energy or desire to write about them. It's all the same ole stuff though, and mostly thoughts and problems I am having with school. All I have today is a pic of the kids taken tonight. Ella fresh out of the bath and in jammies and Hunter about to go up for his. I love Hunter's smile in this one....his true smile doesn't show up for pics very often these days so I am happy to see it when it does!
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<br />Kacey Bodehttp://www.blogger.com/profile/00416383186475328888noreply@blogger.com0tag:blogger.com,1999:blog-7472224025094243451.post-26370907910758222222013-10-19T22:06:00.001-07:002013-10-19T22:06:32.760-07:0031 for 21: Happy Birthday to DaddyToday was Daddy's birthday! Ella LOVES a birthday (hers the most of course!) She must have told Chris Happy Birthday 100 times today. So sweet. The best was when she sang Happy Birthday and added the "cha cha cha" so cute!!!!<br />
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Daddy opening presents.<br />
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My mom got him a Keurig, he is in coffee heaven!!!!<br />
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The apple pie I baked him...it was a pain in the butt, but he says it was worth it : )<br />
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Singing Happy Birthday to Daddy!!!<br />
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<br />Kacey Bodehttp://www.blogger.com/profile/00416383186475328888noreply@blogger.com0tag:blogger.com,1999:blog-7472224025094243451.post-10469680417646745082013-10-18T20:02:00.001-07:002013-10-18T20:02:04.665-07:0031 for 21: Just playing<div class="separator" style="clear: both; text-align: center;">
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<br />Kacey Bodehttp://www.blogger.com/profile/00416383186475328888noreply@blogger.com0tag:blogger.com,1999:blog-7472224025094243451.post-26824279683383348932013-10-17T14:40:00.001-07:002013-10-17T14:40:46.014-07:0031 for 21: More readingElla brought home another one of her little books from school yesterday. She pulled it out of her backpack and asked me to record her reading : ) I LOVE that she wants to show off her reading! Yay Ella!!
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<embed flashvars="&p=1284d012bede26972b099eb&skin_id=701&host=http://www.onetruemedia.com" height="382" name="FLVPlayer" pluginspage="http://www.macromedia.com/go/getflashplayer" quality="high" salign="LT" scale="noscale" src="http://www.onetruemedia.com/share_view_player?p=1284d012bede26972b099eb" type="application/x-shockwave-flash" width="408" wmode="transparent"></embed><br />
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<a href="http://www.onetruemedia.com/landing?&utm_source=emplay&utm_medium=txt5" style="text-decoration: none;" target="_blank">Make a video - it's fun, easy and free!<br /><span style="text-decoration: underline;">www.onetruemedia.com</span></a></div>
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If you can't view it above, click <a href="http://www.onetruemedia.com/shared?p=1284d012bede26972b099eb&skin_id=701&utm_source=otm&utm_medium=text_url">HERE</a>Kacey Bodehttp://www.blogger.com/profile/00416383186475328888noreply@blogger.com3tag:blogger.com,1999:blog-7472224025094243451.post-52899064471106470732013-10-16T10:11:00.000-07:002013-10-16T10:11:36.985-07:0031 for 21: The dreaded re-evalThe school psychologist called me on Monday to let me know that they want to split Ella's IEP meeting up into 2 meetings. The first to discuss her re-evaluation results and get a game plan as to what her services will look like based on these findings. The second to do the actual IEP.<br />
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For those who don't know, or those whose school districts may be different, our children in this school district get re-evaluated every 3 years. Technically. Unless you fight with the preschool to hold your kid back a year, that moved our re-eval up to 2 years. This year Ella's eval is due in May, I think, and because her IEP is due November 14th they asked if they could just do it now. Makes sense.<br />
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Anyhow, the school psych called on Monday and told me they had scheduled the meetings for Nov 7th and Nov 12th. There is one big problem, Chris (my husband) will be out of town on the 7th. In years past I have always done all of Ella's meetings by myself, except for the one when we plead our case for Ella to stay in preschool an extra year. But this year is different. First grade is when the intergrated classroom setting, which has been perfect for Ella, ends. The school had plans for Ella that included a whole lot of time in the extended resource room, (think self-contained because that's how it felt) and lunch and "extras" (music, library and PE) with the gen ed classroom. That was simply not going to work for us. Very long, nerve wracking story short we currently have Ella in about 50% gen ed and 50% special ed. It seems to be working. I cannot, however, shake the feeling that the results of these evaluations are going to be used to pull Ella out of gen ed time. <br />
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I should note that even when Chris did attend a meeting he was basically silent. He didn't really know what to say. He didn't know what the laws are, and didn't know really the day to day involvement of therapies and special ed teachers etc. Well, we all went to the Down syndrome conference in Denver this past summer and apparently that really opened his eyes! It's been great and so nice for me to have a partner (other parent) in this that has the same long term goals for Ella that I do and is now very vocal about it. Love it. <br />
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So, I told the school psych that I wasn't really comfortable with that first meeting because Chris will be out of town. She said that it's just to discuss the evaluation results and how they effect Ella's services. The school psych is VERY sweet, and really seems to be on our side, if you will, but she doesn't get it. I don't think any of them do, and really couldn't unless they are the parent of a child with a disability. I explained to her that this meeting will SUCK for me. It is not pleasant to sit and listen to a speech therapist tell you that your child speaks like a child several years younger, the physical therapist tell you in all the ways that your child is physically weak, the occupational therapist to tell you that fine motor tasks are hard for your kid and that she needs a lot of work to help her write, heck that she can't even button her own pants of zip her own coat, and then you get to listen to a couple of different people tell you how far behind your child is cognitively. That one is the worst. It is once again brought up to the surface that no matter how hard your little girl works she will NEVER catch up to her peers. I have been listening to these things for 7 years now. It will NEVER be easy to hear. Ever. It will devastate me every single time, without fail. I will cry. I can't help it. They will all tell me that Ella is doing great and that she works so hard, and yet that doesn't change the outcome. The school psych told me she will hold my hand. I had to laugh a little. It's just not the same. They just don't get it.<br />
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Kacey Bodehttp://www.blogger.com/profile/00416383186475328888noreply@blogger.com3tag:blogger.com,1999:blog-7472224025094243451.post-83637205361925571062013-10-15T20:19:00.003-07:002013-10-15T20:19:55.204-07:0031 for 21: Pumpkin PatchToday I got to walk to the pumpkin patch with Ella and her 1st grade class!
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Ella and her classmates listening to the farmer. She looks so tiny!<br />
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Happy girl!<br />
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She kept telling me she was going to pick a "tiny" one!<br />
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Ella picked out her perfect pumpkin and raised her hand and waited for someone to come and cut the stem for her, just like she was told to do!<br />
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Darn bright sun!<br />
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Our attempt at a pic of us : ) Ella's glasses were handed to me in a Ziploc bag today...luckily only the nose pad broke off of her glasses.<br />
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Woo! That was one heavy pumpkin!<br />
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Ella's 1st grade class!<br />
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I just love her : )<br />
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<br />Kacey Bodehttp://www.blogger.com/profile/00416383186475328888noreply@blogger.com0tag:blogger.com,1999:blog-7472224025094243451.post-27404461923906517562013-10-14T21:14:00.000-07:002013-10-14T21:14:28.042-07:0031 for 21: HomeworkSo far 1st grade homework has been pretty easy! Ella's gen ed teacher gives out a monthly homework packet. It seems like it is less then the homework she had in Kindergarten, that or she is just protesting less!!!
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Part of her packet is 5 sheets of math problems. They are supposed to be practicing their addition facts....which I think is like remembering your multiplication tables. The kids are supposed to do all the problems in a certain amount of time. I looked at all of these problems and thought, SERIOUSLY?? Much to my surprise Ella enjoyed her first 2 worksheets, in fact did them both in one sitting! She was even grasping the concept that a number + zero = the number. So she would say "2+0=2" without thinking about it! Yay! The rest of them she couldn't just rattle off like that, but she was totally able to figure them out herself! I am just so proud!!!<br />
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This evening we did the 3rd worksheet, she did great but needed a little extra incentive to finish....whatever works : )<br />
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<br />Kacey Bodehttp://www.blogger.com/profile/00416383186475328888noreply@blogger.com0tag:blogger.com,1999:blog-7472224025094243451.post-2045958707416754382013-10-13T19:28:00.001-07:002013-10-13T19:28:46.942-07:0031 for 21: Birthday PartyElla was invited to her little friend Aliana's birthday party at the roller skating rink today! This was Ella's first time on skates! I had the boys come along so that Chris could help Ella out on the rink and Hunter could skate too!
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Ella was super excited getting her skates on!<br />
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Hunter's first step on the rink (today) was a clumsy one : )<br />
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She seemed to enjoy it for a minute<br />
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Even tried it by herself<br />
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and then something set her off....she didn't fall but she started freaking out. She sat down and folded in half and started bawling.<br />
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Blurry but a cute pic of that beautiful face : )<br />
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Daddy tried one more time to get her to have fun...<br />
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It didn't work...and the flash on the camera does a great job at washing out a red blotchy cry face.<br />
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Getting off the rink<br />
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She was not pleased.<br />
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Hunter had a great time roller blading though! He did pretty darn good!<br />
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Stopping wasn't his strong point, lol, but he did good!<br />
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Ella did have a blast at the party though! They had this indoor climby thing<br />
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and a bounce house!<br />
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My boys : )<br />
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Ella and her sweet little friend Aliana! <br />
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<br />Kacey Bodehttp://www.blogger.com/profile/00416383186475328888noreply@blogger.com1tag:blogger.com,1999:blog-7472224025094243451.post-44486775931050101732013-10-12T21:52:00.001-07:002013-10-12T21:52:16.023-07:0031 for 21: GoooooaaaaaalllllllThis has nothing to do with Down syndrome......Hunter scored THREE goals at his soccer game today! YAY HUNTER!!!! I love watching my boy play, especially when he has a smile on his face!!!
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<br />Kacey Bodehttp://www.blogger.com/profile/00416383186475328888noreply@blogger.com0tag:blogger.com,1999:blog-7472224025094243451.post-71872590880158324902013-10-11T23:17:00.000-07:002013-10-11T23:17:13.975-07:0031 for 21: Just a picIt's late and I am sleepy so all I have is a picture of my cutie from today!
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<br />Kacey Bodehttp://www.blogger.com/profile/00416383186475328888noreply@blogger.com0