Friday, October 26, 2012

31 for 21: School spirit

Fridays are spirit day for Ella's school and the kids are supposed to wear their school shirts. I am so glad I bought her a shirt because she LOVES it!!! She gets so excited on Friday mornings to put on her shirt jumping up and down and shouting "MY KINDERGARTEN SHIRT!!!!!"
 
 
 
 
And who wouldn't love her school?  I was chatting with the principle earlier this month and she asked me to get some facts together for her for Down syndrome awareness month.  This past Friday she put the facts in the school newsletter....


October is Down Syndrome Awareness Month!

Down syndrome is a genetic condition that occurs in one out of every 691 live births.

Individuals with Down syndrome are born with 47 chromosomes instead of the usual 46. They have an extra copy of the 21st chromosome. It is the most frequently occurring chromosomal disorder.

Down syndrome is diagnosed either during prenatal testing or shortly after birth. It is often thought that babies with Down syndrome are only born to older moms, but over 80% of these babies are born to moms under the age of 35.

Despite some common misconceptions people with Down syndrome are not always happy. They have feeling just like everyone else!

Children with Down syndrome have low muscle tone. This means that their muscles are weaker and don't have the same stamina as their peers. It also means that they have to work much harder to do everyday tasks. This low tone effects everything from coordinating all the muscles needed to speak, the muscles needed to do fine motor tasks such as writing, as well as their large muscles used to walk and run. With the help of physical therapy, occupational therapy, and speech therapy children with Down syndrome will be able to do the same things that their peers do it just takes a bit longer to train those muscles!

A person with Down syndrome can have a mild to moderate intellectual disability but there is no limit to the potential of individuals with Down syndrome!

Many people with Down syndrome are going to college and have jobs. Never underestimate them!

Children with Down syndrome are more like other children than they are different. They enjoy the same activities that all children do. They take dance class, play on sports teams and most of all they love to be included!


I love it!!!!!

Thursday, October 25, 2012

31 for 21: The Doc is in

Ella's latest obsession is with the show Doc McStuffins. She LOVES it! She sings the "time for a check up" song all day. One of the cutest things to come from her love of this show is that she plays doctor ALL THE TIME. Ella walks around the house with a spiral notebook (which she calls her scrapbook) and gives out diagsosis's. It's hysterical. The few I can think of off the top of my head are

Eye-osis
Carroteye-osis
Grumpy-osis
Chicken pox

Ruby (our dog) has also apparently had some illnesses. Her current diagnosis's are
Tail Waggin-osis
Naughtydog-osis
Barking-osis

I love her imagination! Her is Ella with her "Lambie" from the show

 


 

Wednesday, October 24, 2012

31 for 21: Wordless Wednesday

....except for the words on her shirt : )







Tuesday, October 23, 2012

31 for 21

I mentioned a couple of posts ago that Ella has issues with noise. She HATES anything loud, especially if it startles her. When she was really little sudden laughter would make her cry, she still doesn't like it and will tell us "no laugh!" When Hunter and Chris wrestle, she will cry and run away. The kid just doesn't like loud. Lately though it has seemed to get a bit worse. Situations that she would usually just cover her ears for were making her cry. For example, at Hunter's soccer game a few weeks ago Chris and I cheering for Hunter made her sob. I decided enough was enough. I remember reading about other kiddos with Ds who's parents got them sound blocking headphones and figured I would start there!

  Now I will say that I am not a fan of putting things on Ella that will cause people to stare at her more than they already do. I don't enjoy the constant attention. I did NOT want to deal with glasses when she got them when she was 4, and a big part of that was that I was mad that it was just another thing that made Ella look different. You know, one more thing to deal with. The thought of putting headphones on Ella made me a big uneasy. I TOTALLY understand that this is all MY issue, but it is what it is and I can't help the way I feel. Anyhow, I ordered Ella the brightest pink headphones in the the world. I was kind of afraid that she wouldn't wear them. But to my amazement the kid LOVES them. At the first soccer game she wore them at when we would cheer she would tap the side of her ear phones, smile really big and shake her head yes. She can still hear, it just muffles some of the sound. The big test was this past Saturday. We went to a Spokane Chiefs hockey game and it is super loud in there. I was nervous that they wouldn't block enough sound, but they did and she had a blast and was so well behaved!!!!

Yes, people do stare even more. In fact at the hockey game I kept watching this lady who was sitting in front of Ella turn around and STARE. Like not trying to hide it just flat out staring and watching Ella. She would occasionally look my way and see me staring back at her and would smile. I'm sure she was just trying to figure out what all was going on with Ella. LOL. Nothing malicious just curious. And guess what...it didn't bother me! I think...MAYBE...I have finally come to a place where I just don't care. Stare away. She is pretty amazing don't you think. Of course I know that I won't feel that way when people are staring because Ella is freaking out about something or being naughty, but you know what I mean : )

  Anyhow, the point of this post is that these headphones rock. I feel so bad that I didn't get them 6 years ago. They obviously help my girl be in situations that would otherwise really bother her. YAY!


Monday, October 22, 2012

31 for 21 : Apples

Well, this post really doesn't have anything to do with Ella...or Down syndrome. Instead it's all about the 40lbs of apples we got at the farm last weekend. Ella did help us pick out apples, so that counts right? Oh and she LOVES applesauce.

The beginings of the apple butter....it cooked for 48 hours in the crockpot, adding more apples and spices every 10 hours.
On Friday Hunter and I made Chris an apple pie from scratch for his birthday.


It was pretty tasty.
Peels peels peels.  My kitchen may never be the same...or not sticky.
We got 21 half pints of apple butter out of that batch...we kept one out for ourselves so it's in the fridge.
Sure hope it's good, frankly I've smelled it for so long now that it has lost it's appeal : )  Oh hey wait, that towel is blue and yellow....Down syndrome colors. There you go, I'm advocating : )
And the applesauce!

Sunday, October 21, 2012

31 for 21: An oldie but goodie

These pictures are from May 17th, 2007 so Ella was 9 months old.  I have always loved these pictures.  I ran across this onsie a couple of week ago while we were going through some boxes in our storage unit.  I so miss those days!!!!














Saturday, October 20, 2012

31 for 21: Another tooth lost

Ella lost her 5th tooth today! Bubba better watch out cause little sister is catching up!!!! I am still amazed that she has lost this many, I guess I figured that since she was late getting teeth she would be late losing them too. Hunter didn't lose his first tooth until he was 6.   Daddy had to help the tooth out, it was super super loose and he was worried she would swallow it : )