Ella's bowel study came back today, it was good, no Hirshprungs!! This is great news. On the other hand we had her cardiology appointment today and they do want to go ahead and repair the PDA in her heart. It really isn't too big of a deal, she will even get to come home the same day. Their reasoning for going ahead with the closure is that she has a history of pneumonia and aspirating her liquids, which is hard enough on the lungs, and the PDA circulates extra blood that has just come out right back into the lungs, so closing the hole will help prevent pulmonary hypertension. Also they want to look inside and make sure that everything is okay with her aorta, since it was shown "bulging" into her esophagus during her upper GI study. They did a repeat echo today and said something about her aortic something or another coming in from the left instead of the right, I don't know what they are talking about could have been another language for all I know. Also an open PDA also increases the risk of an infection in the heart which obviously is no good. So, surgery is set for December 3rd. The doctors were great, at the Center for Congenital Heart Defects, so I am not too nervous!
I was asked last week by the Director of Ella's school, Spokane Guilds School and Neuromuscular Center, if I would like to be on the Board of Directors. Of course I said yes. I am super excited about it!! I have a meeting with the Director tomorrow while Ella is in school. I LOVE LOVE LOVE her school!!! Well, I suppose that's it for now, just wanted to update everyone on Ella's medical stuff!!
Happy 8th Birthday Colin!
1 week ago