Tomorrow Ella and I have to check in at the hospital at 7:30AM (have I ever mentioned on here that I am NOT a morning person????) Ella is having an upper GI through small bowel study done. I'm not really concerned about it, her pediatrician wants it done because of Ella's reflux and constipation issues. I'm pretty sure her issues are just due to her low muscle tone. I am not looking forward to this study though, Ella's strong point is NOT sitting or laying still and she is not allowed to eat so that she will drink their barium mixture. What they fail to realize is that Ella would eat or drink no matter what, so I am going to have a grumpy hungry child on my hands!! At 11:30 tomorrow Ella will begin her extra speech therapy session, I requested that Ella receive extra speech on top of what she gets during toddler group and the school agreed. So she will be getting an extra 45 minutes a week. Speech has always been my major concern with Ella, the physical stuff comes easier to her then the speech. Ella is doing fantastic learning more signs all the time and trying to imitate sounds and words but I still feel like she is behind because she did not start speech till she was 13 months old.
Wednesday morning I have to get up early again, I have to be at Ella's school at 7:45. I was asked to share my story about Ella and how the Guild School has helped us for their Board of Trustee's meeting. No problemo there, I could talk about Ella all day long : )
Here are some pics from 2 weeks ago.. Ella is such a Nana's girl!!
Kissing through the chair, all Ella's idea.
Kisses for quack quack
You better not get my drink duck!
"Being happy doesn't mean everything's perfect. It means you decide to see beyond the imperfections." - unknown
I am a mother to two incredible children. Hunter is 8 years old and Ella Grace is 6 years old. My children are my life, my true joy. My life was turned upside down when my daughter was born and surprised us all by having Down syndrome. Since her birth I have come from sorrow and a sense of loss to greater happiness than I ever imagined and I owe it all to The Amazing Ella Grace! Contact me anytime by email firstname.lastname@example.org
My face may be different,but my feelings the same.I laugh and I cryand take pride in my gains.I was sent here among you to teach and to loveas God in the heavenslooks down from above.To Him I'm no different,His love knows no bounds;It's those here among you, in cities and townsthat judge me by standardsthat man has imparted,but this family I've choosenwill help me get started.For I'm one of the children,so special so few,that came here to learnthe same lessons as you.That love is acceptance, it must come from the heart;we all have the same purpose,though not the same start.The Lord gave me lifeto live and embrace,and I'll do it as you do,but at my own pace.-Unknown