Friday, October 24, 2008

Using Utensils and the Heart

Get It Down; 31 for 21
First off I want to say that Ella's doctor called this morning, she received the report from the Upper GI study Ella had on Tuesday. Her intestines looked good, she did reflux while on the table (duh) and they saw something of concern. So, I take a deep breath and she tells me that Ella's aorta is bulging in her esophagus. I say "what does that mean???" Dr says that means that her aorta is making her esophagus narrow because it is pushing in the wall. Um, okay. She tells me that her nurses will get Ella scheduled for an echocardiogram and that it will probably be a week or two. Ten minutes later the nurse calls back and says the heart institute wants to see her Monday morning. I am trying REALLY hard not to freak out about this. Ella had a PDA when she was born but at 3 months she had a repeat echo in Dallas, TX and was completly cleared of any heart issues, no follow ups nothing, done. I am going to be SO pissed if something was missed. I am comforted by the fact that Ella has no signs at all that anything is wrong, obviously well nourshed and has enough energy for 10 people. So that was how my day started off, fun. Anyhow....

Ella has been doing SO good using her spoon and fork to eat. She was having a really hard time poking food with her fork due to her shoulder weakness, but ever persistant she has mastered it!!! Ella is just getting so big, I'm so proud of her!!
These pictures are from last night after dinner, apparently I was not paying enough attention because when she was done with her Boca "Chicken" she decided to try to use her fork to eat just ketchup, here is the results.....




































18 comments:

Sabrina said...

Great that she can use a fork so well. Abbi has been working on that too. Little Ella will be much in our thoughts and prayers that there will be no sign of a problem when the echo is done on Monday. Keep us posted!

Tricia said...

Will be waiting to hear the results of the echo. I am sure you are beyond concerned...just hearing those words is scary. It IS a good--a GREAT-- thing that Ella seems fine. I'll be thinking of you and waiting to hear what's going on.

Mary said...

Just think... at least you will know of monday. No waiting for results with Echo's the Dr has always given us the scoop right then. I'm sure everything is good but I don't blame you for freakin a little. Don't forget to call on your friends if you need to freak. Don't bottle it up. :-)

Kristen said...

I empathize with you over the uncertain new about Ella's heart. We'll be praying.

Ella must love Ketchup!! That's just like my little sister (she's 3 1/2). She will dip her fries in the ketchup and just lick them off. These silly kids! :o)

Jennifer said...

Praying for you guys! Remember, Be anxious for NOTHING! Philippians 4:6!!!

My name is Sarah said...

What a good little eater you are.

Melissa @ Banana Migraine said...

She is doing so well with her fork! Yay!! I'm thinking of you and Ella for the results of the test. I'm sorry that you have that extra worry.

jennifergg said...

she's adorable...

and i'll be keeping a good thought.

xo

Aunt Tami said...

She looks like she is doing good with her fork! I dont think she got any of that ketchup in her mouth though--Ha! We will be thinking of missy on Monday, hope the echo goes ok. Hope it will be an easier time for you than the GI study was. Please call us and let us know how it went. Love ya's--Aunt Tami and family

Mommy & Peepers said...

Wow, how scary! The heart docs are really good! I'm glad they have learned what is going on. You all are in our prayers. I have to warn you, expect to wait for at least 30 minutes past your appointment, they are really bad at being on time, but they are awesome and nice. Carolee

Robin said...

Ella Grace wil be in our prayers. I know your little angel will be fine...she has so much to teach us. Way to go with the fork!! Morgan loves anything with tomatoes...salsa, soups, marinara, etc... probably ketchup too. Very sweet photos. Thanks for sharing. Keep us posted on Ella's echo.

kayla said...

great blog some how i found you when i was looking for stuff on our son and his birth defect on esophageal atresia such a great blog site you have i wish you all the best.

Cleo said...

Ella is SO CUTE!!!. Keeping Ella Grace and you in my prayers and positive thoughts. :)

Shawndi84 said...

YAY!! What a big girl Ella!

You will be in our prayers... :)

Melanie said...

That is really scary! I would be worried they missed something too. Hopefully it is nothing serious. Good luck tomorrow, we will be thinking of you both.

Anonymous said...

I hope the echo goes well tomorrow and my prayers are with you and your family. Ella is so precious and is really doing well with the poking with a fork!! Take care Kacey!!

Tsquared417 said...

I will be thinking of you and Ella. How frustrating and worrisome....go Ella for using her fork! :)

Chris said...

She's doing great with her fork! Praying that NOTHING turns up on the echo. I seem to recall another little one having reflux and the doctor mentioning the aorta and the esophagus--it turned out to be nothing to worry about. Hoping the same holds true for Ella. Keep us posted.