My computer has crapped out on me, we are in the process of moving and we unplugged it to get it off of the stand, plugged it back in and it's not working. A friend of ours is looking at it for us so hopefully I will be back online tomorrow, for now I am updating from my moms house.
SO, we had Ella's echo cardiogram today. The tech asked me about Ella's heart history and I told her that Ella had a PDA (Patent ductus arteriosus) at birth, we went to the cardiologist in Dallas, Texas at 3 months old and Ella was completely cleared, PDA closed no problems, no follow-ups. So, the tech today starts looking at Ella's heart, about 2 minutes into it she says, "yeah, she has a PDA still." WHAT????? Anyhow she finished up the echo, said that Ella's aorta is "generous" meaning a little bigger but still within normal ranges. She didn't know what they saw on the Upper GI Study. Now we just wait for the Echo to be looked at by a doc, the results to be sent to Ella's pediatrician and then we will get a referral to a cardiologist. I'm not too terribly worried, after all there isn't anything wrong with her aorta (which scared the crap out of me.) A PDA is the "good kind" of hole in the heart (that's what the docs told me when Ella was born,) I'm pretty sure that if she does have to have it closed it's an out-patient thing and not too terrible frightening.
So, there you have it, overall a much better outcome than I was fearing! It's funny how much your perspective can change. Had I learned this last week before her GI study I would be totally freaking out right now, but having been told that her Aorta was bulging in her esophagus the PDA is a piece of cake! I will say however, that I am PISSED that she still has the PDA and yet was given a clean bill of health for her heart. I mean what if she had had problems?? Ugh, one more reason to hate Texas : )
And I Wish I Could Read Even More!!
3 years ago
10 comments:
Such good news! In the grand scheme of what the news might have been.
I'd be upset too with those Texan docs for giving you misinformation.
The PDA can still close on its own right?
I thought about Ella all weekend. I am glad things went as they did and anxious to hear what the cardiologist says about the PDA. I'm sorry texas holds such bad memories for you :(
Love
Deena
I agree, perspective is such a funny thing. Different experiences sure have a way of changing it.
And these crazy doctors. How is it that they can miss these things?!
I'll keep praying that it stays less serious.
I can see how that is discouraging when you were led to believe that it was gone. Infants normally have PDA's at birth. An asymptomatic PDA in a new born probably would not cause alarm from the Docs. I'm sure it will all work out fine but like you, I would rather have the PDA than the enlarged aorta.
Thank the Lord. Piper had her PDA closed in feb. The prep took 2 hours, the procedure took 15 minutes. Dr G learned from the best in NY. HUGS.
Whew!! I am so glad to hear that her aorta is "generous" but that it is still considered within normal limits. You are right the PDA thing is a lot easier to resolve than what could've been. How crappy that the docs in TX said that her PDA had "resolved" when it really hadnt. It might have looked like it had closed but really they should have done repeat echo's to be able to say with certainty that it had closed for good! But I am glad in the grad scheme of things the news was pretty good. Hope your computer turns out ok. We love ya's--Aunt Tami and family
We're glad to hear Ella is doing good. Natasha has a PDA and a huge VSD (huge according to the cardiologist). We first saw the cardiologist in Dec 07. He said we would need to have open heart surgery by her 1st b-day (Sept 08) to close it up or it'll cause damage to her heart and lungs. He didn't think it would ever close on it's own. We go back several more times, the last time being in April. At this appt, he sees a piece of tissue covering her huge hole!!! It's not completely sealed off yet so blood is still leaking through. I have researched natural methods to help her body heal (supplements and craniosacral therapy). Our next appt is in Nov. The body is amazing and miracles do happen. Don't give up, Ella has amazed you from the start, she will continue to do so. Don't even get me started about doctors.....
Lisa
Awesome news! Big sigh of relief!
YAY!! I am so happy for you all! That is such great news!
Whew!! Great news! Be sure to check out Kayla at Big Blueberry Eyes. She had her PDA closed (I believe) last year. Piece of cake. ALso, Lisa (The Bliss Family-also a good friend) shows proof with her daughter, Natasha,that the body has amazing healing powers. I am amazed everytime I see Natasha. Look at it this way, it must be an extremely small PDA if the last cardiologist missed it.
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